Clinical name: Ileostomy or colostomy formation
Evidence checked: 2026-11-05
Stoma formation: questions for your clinical team
Important / When to seek help
Urgent help: a stoma and your safety
Call 999 or go to A&E for sudden severe abdominal pain, severe difficulty breathing, confusion or collapse. After an operation, chest or upper-back pain with breathlessness, or coughing up more than a few spots of blood, also needs emergency help. Do not drive yourself. These signs can indicate a serious problem needing immediate assessment.
Contact your surgical team or stoma nurse urgently if output becomes unusually low or stops and you have cramps, nausea or swelling. For a colostomy, NHS England advises an urgent GP appointment or NHS 111 for output stopped for much longer than usual, severe tummy pain, vomiting, a very high temperature or lots of blood from the stoma or in the bag. If you suspect an ileostomy blockage and your abdominal pain worsens or you vomit, go to A&E. Severe abdominal pain also warrants emergency assessment as above.
A marked increase in watery output can cause dehydration, particularly with an ileostomy. Speak urgently to your stoma or surgical team if output rises sharply or you cannot keep fluids down; NHS England advises urgent GP or NHS 111 help for dark or reduced urine, persistent dizziness on standing or unusual tiredness. Confusion or other severe illness needs emergency help. Follow your own high-output plan if you have one.
The NHS.uk urgent advice quoted here is from NHS England. In England, use an urgent GP appointment or NHS 111 as stated. In Scotland, contact your GP during practice hours; call NHS 24 on 111 if you need urgent care when your GP is closed or think you need A&E but it is not life-threatening. In Wales, contact your GP or NHS 111 Wales. In Northern Ireland, contact your GP, or the local GP out-of-hours service when the practice is closed and the problem cannot wait. NI Direct lists local numbers. For an emergency, call 999 or go to A&E. Do not drive yourself to A&E; ask someone to drive you or call 999 for an ambulance.
This guide is educational and has not been medically reviewed for this platform. Use it to inform a discussion with your own care team, not to diagnose yourself or choose treatment without assessment.
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What a stoma changes
Normally food passes from the stomach into the small bowel, where nutrients are absorbed, then into the colon, which absorbs water. Stool collects in the rectum and passes through the anus. A bowel stoma creates an opening in the abdominal wall from the intestine, so stool and wind leave the body into a pouch rather than following all of that route.
An ileostomy uses the ileum, the last part of the small bowel. Its output is often liquid or porridge-like because it has not passed through the colon to the same extent. A colostomy uses the colon; its output is often more formed, although consistency depends on the amount and position of remaining colon and on the individual.
A stoma is usually moist and pink or red. It has no voluntary sphincter, so you cannot choose exactly when stool or wind comes out. A fitted pouch collects both. If a defunctioned rectum remains, its lining can produce mucus that may pass from the bottom. Ask the team which parts of your bowel and rectum remain and what you should expect.
A stoma does not mean digestion has stopped. It changes the exit route and can change how much fluid is absorbed, depending on the location and bowel remaining. If a stoma is made alongside bowel removal, the disease, the amount removed and any medicines also affect bowel function. Ask your team to draw the route before and after your proposed operation.
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Why a stoma may be needed
A stoma can divert bowel contents away from an inflamed, injured or newly joined section so it can heal, or provide an exit when the lower bowel or anus cannot be used. It may be part of treatment for bowel cancer, Crohn’s disease, ulcerative colitis or another bowel problem. Not everyone having bowel surgery needs one.
Some operations are planned after discussion of medicines and other surgical options. In an emergency such as severe bowel disease or obstruction, there may be little time to prepare or a planned join may not be safe. Ask whether a stoma is expected, what could make it necessary during surgery and what the intended benefit is for you.
A temporary stoma is intended for later closure after healing or treatment, but another assessment and operation are needed and reversal is not guaranteed. A permanent stoma may be necessary when the anus has been removed or the remaining bowel cannot be safely reconnected. Some people choose to keep a stoma after discussing likely bowel function and the risks of another operation.
A loop stoma brings a loop of bowel to the surface and opens it; most output is diverted into the bag while the downstream bowel remains in place. Loop stomas are often temporary. An end stoma brings a cut bowel end to the surface; an end stoma can be permanent or temporary, depending on the operation and future options.
For some people with ulcerative colitis, an internal pouch made from small bowel and joined to the anus is an alternative to a permanent ileostomy. It involves staged surgery and is not suitable for everyone. Medicines, a different operation or a period of monitoring can also be options in particular situations. Ask about the trade-offs in your diagnosis, including function and follow-up.
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Planning and making the stoma
Before planned surgery a stoma nurse or surgeon can discuss the site, taking account of scars, skin folds, clothing, cultural needs and whether you can see and reach it. The site is often marked with you in different positions. Emergency surgery may leave less time for marking; ask to meet the stoma nurse afterwards if preparation was not possible.
Pre-assessment covers your health, medicines, allergies and anaesthetic. Give the team a complete medicines and supplements list, including blood thinners, and mention possible pregnancy. Follow your own hospital’s fasting and bowel-preparation instructions. Ask what help with nutrition, smoking or general fitness is suitable in the time available.
Stoma formation usually takes place under a general anaesthetic, with the anaesthetic team monitoring you. The surgeon operates through an open incision or keyhole access as appropriate, brings the selected bowel through an opening in the abdominal wall, and stitches its lining to the skin. A pouch is fitted over the opening. Other surgery, including removal of diseased bowel, may be done at the same time.
Afterwards ask which bowel was used, whether the stoma is a loop or an end, whether a join or bowel removal was also performed, and whether the stoma is intended to be temporary. If the operation was urgent, ask for the findings to be explained again when you feel ready. The answer may affect supplies, output and future decisions.
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Benefits and surgical risks
A stoma may let an inflamed or newly joined part of bowel rest, provide a safe exit for stool or relieve an obstruction. The benefit depends on the underlying condition and the operation. A diverting stoma does not guarantee that a join will not leak, and additional treatment or monitoring may still be needed.
The operation can involve bleeding, infection, injury to nearby structures, blood clots or anaesthetic complications. A bowel join, if made, can leak and cause serious infection. Temporary slowing of the bowel or obstruction can cause bloating and vomiting. Ask about your own risks, how the team will reduce them and the signs that need help after discharge.
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Learning to care for your stoma
The stoma may be swollen after surgery and change size as swelling settles. In hospital, the team monitors your wound, pain, fluid balance and output. The stoma nurse teaches you to empty and change the pouch, clean and dry the skin, measure the opening and recognise changes. Practise with support before discharge and ask for written instructions.
The adhesive opening should fit around the stoma so output does not remain against the skin. Bags may be one-piece or two-piece, drainable or closed. What works depends on output, body shape, hand function and preference. Leaks, burning or repeated soreness are reasons to ask your stoma nurse to check the fit rather than accepting damaged skin as normal.
Before going home, check how to order prescribed bags and accessories, how to dispose of used pouches and whom to call if you run out. Agree a supply plan and community stoma nurse follow-up. A small kit with spare bags, wipes and a disposal bag can make time away from home less stressful. Ask for help adapting the routine if sight, mobility or dexterity is limited.
Skin irritation can result from leakage or an ill-fitting pouch. A bulge around the stoma may be a parastomal hernia; the stoma can also retract or protrude further than before. Contact your stoma nurse or GP about a change, discomfort or skin trouble. A change with pain, vomiting or absent output needs urgent assessment as described above.
Walk and increase activity gradually as advised. Ask the team about wound care, lifting, driving, work and caring responsibilities; the operation and your recovery determine restrictions. Discharge should include pain relief instructions, follow-up and an out-of-hours contact. Tell the team if pain or fatigue prevents you from doing the activities agreed in your plan.
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Output, hydration and life beyond the operation
With an ileostomy, output can be looser and fluid and salt losses can be greater. Know your usual pattern and ask how to measure output if your team recommends it. Very watery or much increased output, thirst, dark urine, dizziness or weakness can signal dehydration. Infection, medicines and other causes may need investigation.
High-output stoma management is individual. A specialist may recommend a measured oral rehydration solution, changes to fluid intake or prescribed medicines after assessment. Drinking unlimited plain water can worsen fluid and salt balance for some people with high output. Do not start or change medicines or restrict fluids on your own; follow the plan from your care team and seek urgent advice when unwell.
Eating may be different at first. The team may suggest smaller meals and a temporary adjustment in fibre, followed by gradual return to a varied diet as tolerated. Introduce changes one at a time if helpful and ask for dietitian support if you are losing weight, struggling to eat or avoiding many foods. Advice depends on the operation, symptoms and medical needs.
Travel, exercise, work, relationships and intimacy are possible with a stoma, but confidence can take time. Consider a spare-supplies plan and accessible toilets when travelling; ask your nurse about a support garment or activity that suits your recovery. If body image, sex or emotional adjustment is difficult, raise it with your team or a stoma support organisation.
A stoma may relieve symptoms or protect a bowel join, but its effect depends on why it was made and what other treatment is needed. Crohn’s can recur after surgery, and a stoma has its own practical and medical considerations. Individual outcomes cannot be predicted from another person’s experience. Ask for follow-up for the underlying condition as well as for the stoma.
For your next conversation
Questions for your clinical team
Choose the questions that matter to you.
- Why is a stoma recommended in my situation and what alternatives are reasonable?
- Which bowel will form the stoma, and will it be a loop or an end?
- Is it intended to be temporary, and what might prevent a later reversal?
- Can a stoma nurse help mark the site and discuss clothing, mobility and my preferences?
- What output and skin changes should I expect, and what needs urgent help?
- How should I recognise and manage a high-output stoma or dehydration?
- Who will teach me pouch care and arrange supplies and community follow-up?
- When can I return to work, driving, exercise and intimacy?
- What follow-up do I need for the illness that led to this operation?
